3rd ESO Masterclass in Cancer Patient Advocacy
Not eligible for ESCO credits
23.02.2018 - 25.02.2018
Lisbon, Portugal
MASTERCLASS
Description
Scientific Co-ordinator: K. Redmond, CH
Steering Committee: V. Astratinei, RO - K. Benn, IT - S. Diler, TR - J. Geissler, DE - G. Henning, UK - T. Kolarova, BG - L. Makaroff, BE - K. Mastris, UK - K. Oliver, UK - A. Plate, DE - J. Taylor, UK - A. Stunt, UK - S. Wintrich, UK
The Masterclass in Cancer Patient Advocacy was launched by the European School of Oncology in 2014 to meet the educational needs of highly experienced cancer patient advocacy leaders who have limited opportunities to develop their advocacy skills, get updated on key cancer policy issues and explore how to improve their organisation’s performance.
This third edition of the Masterclass will bring together senior representatives of European and international cancer patient networks as well as a small number of future leaders.
To ensure that the Masterclass meets the needs of senior European cancer patient leaders, ESO has established a steering committee consisting of representatives from a number of the European cancer patient networks.
Selected EU/international cancer patient networks will be invited to send two delegates to the Masterclass (in addition to their representative on the Steering Committee).
LEARNING OBJECTIVES
• Help participants hone their advocacy and leadership skills
• Discuss ways of improving organizational impact and effectiveness
• Review state-of-the-art approaches to evidence based advocacy
• Provide participants with the opportunity to network and share experiences
MAIN TOPICS
• Lobbying for change
• Building effective and sustainable EU cancer patient networks (leadership, effectiveness, challenges of working with industry, Boards)
• Achieving sustainable access to cancer therapies
• Developing advocacy leadership skills (Communication, Persuasion & Influence, Coaching, Interpreting scientific data)
• Moving from anecdotal to evidence based advocacy
The Masterclass will be held in collaboration with the following cancer patient organisations:
- Childhood Cancer International (CCI)
- CML Advocates Network
- Europa Donna
- Europa Colon
- Europa Uomo
- ECPC
- EURORDIS
- European Men’s Health Forum (EMHF)
- International Brain Tumour Alliance (IBTA)
- International Kidney Cancer Coalition
- INCA
- Lung Cancer Europe (LUCE)
- Lymphoma Coalition Europe
- MDS Alliance
- Melanoma Patient Network Europe
- MPNE Ocular/ Rare Melanoma Group
- Myeloma Patients Europe (MPE)
- Pancreatic Cancer Europe (PCE)
- Thyroid Cancer Alliance
General information
ORGANISING SECRETARIAT
Corinne Hall
European School of Oncology (ESO)
Via Turati 29 - 20121 Milan, Italy
Tel: +39 02 85464522
Fax: +39 02 85464545
Email: chall@eso.net
PARTICIPATING ORGANISATIONS
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MPNE Ocular/ MPNErare Network |
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ACKNOWLEDGMENTS
ESO is grateful to the following companies for supporting this event:
Amgen, AstraZeneca, Helsinn, Lilly, Merck KGaA, Novartis, Pfizer, Roche
Programme
23 February 2018 |
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11:30 | European cancer patient advocacy: An introduction to the community, stakeholder interfaces and key initiatives (optional) Jan Geissler, CML Advocates Network, DE |
12:30 | Lunch |
13:30 | Welcome to the Masterclass and introductions Kathy Redmond, Masterclass co-ordinator, CH |
13:45 | Lobbying for Change: Find Your Voice to Create a Better Society Alberto Alemanno, HEC Paris, FR |
15:15 | Coffee break |
15:45 | Building effective and sustainable EU cancer patient networks (PARALLEL WORKSHOPS) Session Coordinators: Violeta Astratinei, Teodora Kolarova |
GROUP 1: Evaluating effectiveness and impact of patient advocacy organisations Rosie McLeod, Think NPC, UK |
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GROUP 2: Running effective boards Mike Hudson, Compass Partnership, UK |
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16:45 | 1st workshops finish |
16:55 | GROUP 1: Running effective boards Mike Hudson, Compass Partnership, UK |
GROUP 2: Evaluating effectiveness and impact of patient advocacy organisations Rosie McLeod, Think NPC, UK |
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17:55 | Workshops finish/close day 1 |
18:30 | Welcome cocktail (Sky Bar 8th floor) |
19:30 | Dinner (in hotel) |
24 February 2018 |
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08:30 | Achieving access to affordable cancer medicines Session Coordinators: Lydia Makaroff, Geoffrey Henning |
Medicine pricing for dummies João Carapinha, Carapinha & Company, USA |
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09:10 | Closing the gap between the costs and benefits of cancer medicines Jean-Pierre Thierry, FR |
09:50 | Achieving access to affordable cancer medicines: the industry perspective Branca Barata, PT |
10:20 |
Closing the gap: What role do cancer patient organizations have to play? |
10:45 | Coffee |
11:15 | Achieving access to affordable cancer medicines |
Spotlight on community experience in achieving access to affordable medicines
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12:00 | Sustainability of cancer care Tamas Bereczky, EUPATI, DE |
13:00 | Lunch |
14:30 | Developing advocacy leadership skills (PARALLEL WORKSHOPS) Session Coordinators: Karen Benn, Kathy Oliver |
GROUP 1: Effective communication in challenging situations Sandra Bull, 360° Communication, UK |
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GROUP 2: Influencing, Persuading & Negotiating Alison Dawkins, 360° Communication, UK |
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GROUP 3: Preventing burnout when leading a patient organisation Luzia Travado, Champalimaud Cancer Center, PT |
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GROUP 4: Interpreting scientific data Tamas Bereczky, EUPATI, DE & Bettina Ryll, MPNE, SE |
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16:00 | Coffee |
16:30 | Developing advocacy leadership skills (PARALLEL WORKSHOPS) |
GROUP 1: Effective communication in challenging situations Sandra Bull, 360° Communication, UK |
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GROUP 2: Influencing, Persuading & Negotiating Alison Dawkins, 360° Communication, UK |
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GROUP 3: Preventing burnout when leading a patient organisation Luzia Travado |
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GROUP 4: Interpreting scientific data Tamas Bereczky, EUPATI, DE & Bettina Ryll, MPNE, SE |
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18:00 | Close of day 2 |
19:00 | Dinner (outside hotel) |
25 February |
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08:00 | Moving from anecdotal to evidence based advocacy Session Coordinators: Ananda Plate, Sophie Wintrich |
Why evidence and not anecdotes - creating impact Eric Low, Eric Low Consulting, UK |
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08:30 | What evidence do stakeholders need from the patient community in order to make better informed decisions Regulator and HTA/payor: Francois Meyer, HAS, FR Pharmaceutical company: Tony Hoos, Amgen, CH Clinician: Fatima Cardoso, Champalimaud Clinical Center, PT Patient, payor: Eric low, Eric Low Consulting, UK |
09:15 | Evidence based advocacy: examples of impact to date - Ocular Melanoma, Iain Galloway, MPNE Ocular/ MPNErare network, UK - Neurofibromatosis patient communities, Stefania Mostaccioli, EURORDIS, IT |
10:00 | Coffee |
10:30 | Evidence based advocacy: how to increase impact - Unmet needs in the NET community, Teodora Kolarova, INCA, BU - LIPA Patient Survey to lymphoma patients, Maja Kocic, LCE, RS - LuCE report, Mirjami Tran Minh, LuCE, FI |
11:30 | Taking a lead when engaging with key stakeholders: Community Advisory Boards and multi-stakeholder initiatives Jan Geissler, CML Advocates Network, DE |
12:45 | Masterclass closing remarks Kathy Redmond, Masterclass co-ordinator, CH |
13:00 | Lunch + departures |
14:00 | WECAN Meeting (invitation only) |