Effective Patient Pathways
Effective Patient Pathways
Chairs: Claudia Valverde, Yvonne Wengström, Alexandre Brutti
Introduction
CCI4EU (Comprehensive Cancer Infrastructures for the European Union) is a European project aiming to help Member States and Associated Countries improve or develop their existing or future Comprehensive Cancer Infrastructures (CCIs), by helping develop their research & innovation-related capacities.
The CCI4EU project will run over 3 years, it will define and create a Maturity Model with quality indicators, to map the status of CCIs in all Member States and in five Associated Countries. Up to 10 sites have been selected for Deep Dive interventions, with 3 onsite visits to help them build their capacity in particular domains. Along with this, tailored online courses, resources and conferences will be developed to open up the capacity building to a wider audience, with the overall aim of contributing to the Horizon Europe Mission of ensuring that 90% of eligible cancer patients have access to Comprehensive Cancer Infrastructures by 2030.
This Conference, is the third of three that will be held over the course of the project. It will give individuals and teams from developing CCIs direction in helping them build their capacity and develop their infrastructures. The topic of this first conference is: Effective patient pathways.
The gap between research findings and clinical implementation poses a significant challenge in healthcare. Bridging this gap is essential to ensure that the latest evidence is incorporated into patient care effectively. This conference is aimed at professionals involved in translational research, clinical trialists, directors of science and hospital leaders.
Learning Objectives
- Understand the importance of capacity building in patient pathways development.
- Learn how to develop and implement a cancer-type specific patient pathway
- Identify the ways to bring research findings into patient pathways.
- Identify the ways to introduce supportive disciplines care and patient perspective in patient pathway development.
- Enhance collaboration between the multidisciplinary teams and other centres.
- Explore real-world case studies and examples of successful/unsuccessful implantation of patient pathways.
ATTENDANCE TO THE CONFERENCE IS BY APPLICATION ONLY
This conference is part of the CCI4EU project funded by the European Union
Conference Structure
The conference will be a combination of lectures by international experts, discussions and breakout sessions.
During the breakout sessions some selected participants will be given the opportunity to present case studies of their own experience in research and clinical implementation (success stories, trials that didn’t work, trials that are ongoing with issues that need to be resolved).
The faculty & participants will discuss these cases studies in small groups.
Participant’s profile
As this is an EU funded project, the conference is open to anyone coming from EU Member States and the following associated countries: Albania, Georgia, Moldova, Ukraine and Norway.
Priority will be given to delegates from CCIs with a low maturity according to the Maturity Model Mapping. Priority will also be given to multidisciplinary teams from such CCIs, not isolated individuals. In particular we are looking for:
- Clinicians and nurses involved in patient pathways implementation
- Patients involved in activities of participating cancer centres/ CCIs
- Quality in health department staff
- Hospital leaders
Attendance to the conference is on application basis, 100 participants will be selected to attend.
All participants will have their flights and accommodation organized and paid for by the project.
Fluency in English is required.
Location
The conference will be held at Cancer Center Clinical Universidad de Navarra
It will begin at 08:30 on 15 October 2025 and end at 12:30 on 16 October 2025.
Accommodation and Travel
2 nights’ accommodation (14 & 15 October 2024) at Hotel Silken Puerta Madrid will be organized for all selected participants.
Flights/Trains to and from Madrid will be organized by the conference travel agency.
Extra accommodation and accompanying guest will not be covered or organised by the project, nor will extra travel costs such as taxi, car park, etc.
Language
The course will be held in English and translation will not be provided.
Insurance
The organisers bear no responsibility for untoward events in relation to the participation in the event. Participants will be advised to take out their own personal and travel insurance coverage.
Welcome & Introduction
DEVELOPMENT AND ITS DIFFICULTIES
Pathway development
The breast cancer pathway - an example
A cross-institutional patient pathway
Contiuous improvement of patient pathways in collaboration - a Karolinska CCC example
Continued development of pathways in collaboration with patients (patient perspective)
Discussion
Coffee break + Networking
Breakout session 1 - 4 groups + 2 Faculty members in each group, 4 cases per group
Lunch
IMPLEMENTATION
MDTs - optimizing participation for everyone in the health care team
The role of the patient navigator/case manager
Introducing a shared decission-making program
Developing survivorship care programs in the CCC setting
Discussion
Coffee break + Networking
Breakout session 2 - 4 groups + 2 Faculty members in each group, 4 cases per group
End of Day 1
Working dinner
Breakout session 4 groups + 2 Faculty members in each group, 2 cases per group
RESEARCH IN THE PATIENT PATHWAY
How to improve recruitment to CTs?
How to increase the number of academic CTs?
What are the key human infrastructures needed to support CTs?
Discussion
Coffee break + Networking
EVALUATION
Assessing the pathway using KPI data
Assessment and improvement of multidisciplinary teams - AEMAC experience as an example
Can AI be used to optimize the patient pathway? (registration)
Discussion
Closing remarks
Lunch and departures
Alexandre Brutti
Paris, FR
Ana Carolina Izurieta Pacheco
The Hospital for Sick Children, Childhood Cancer Survivorship Fellow at The Hospital for Sick Children - SickKids, Pediatric Oncologist, Toronto, CA
Anita Wanngren
Karolinska Comprehensive Cancer Center, Patient representative, Stockholm, SE
Ann-Britt Johansson
Karolinska Comprehensive Cancer Center, Coordinator at Karolinska Comprehensive Cancer Center, Stockholm, SE
Arsela Prelaj
Fondazione IRCCS Istituto Nazionale Tumori, Thoracic Oncology Unit, Milan, IT
Bettina Mølri Knudsen
Lillebaelt Hospital - University Hospital of Southern Denmark, Center for Shared Decision Making, Vejle, DK
Caitriona Higgins
Beaumont Hospital, Cancer Directorate Dpt., Dublin 9, IE
Claudia M Valverde
Vall d´Hebrón University Hospital, Medical Oncology Dpt., Barcelona, ES
Daniela Martin
Cancer Institute "Prof. Dr. I. Chiricuta", Dept. of Radiotherapy, Cluj-Napoca, RO
Daniëlle Holthuijsen
OncoZON, Policy advisor OncoZON, Maastricht, NL
Eduardo Castañón
University of Navarra, Medical Oncology, Madrid, ES
Erik van Muilekom
Netherlands Cancer Institute-Antoni van Leeuwenhoek Hospital, Urology Dpt., Amsterdam, NL
Esmee Volders
Oncozon / Maastricht Umc+, Maastricht Comprehensive Cancer Center, Maastricht, NL
Karla Salas Gama
Hospital Universitari Vall d’Hebron, Coordinadora Unitat de Qualitat i Millora de la Pràctica Clínica, Barcelona, ES
Laura Lonergan
St James’s Hospital, Clinical Nurse Manager III, Dublin 8, IE
Nadia Hindi
Hospital Fundación Jimenez Díaz, Medical Oncology, Madrid, ES
Peggy Richter
TUD Dresden University of Technology, Research Group Digital Health Dpt., Dresden, DE
Yvonne Wengstrom
Karolinska Insitutet, Department of Neurobiology, Care Science and Society, Div. of Nursing, Huddinge, SE
APPLICATIONS CLOSED
Attendance to the conference is on application basis, 100 participants will be selected to attend. Interested candidates should apply online providing the following:
- CV & list of publications;
- Motivation letter (if you are applying as a member of a team, please state this here together with the names of your colleagues);
- Completed template for the Research and Innovation Case Studies (download the template here)
Priority will be given to delegates from CCIs with a lower maturity according to the Maturity Model Mapping. Priority will also be given to multidisciplinary teams from such CCIs, not isolated individuals.
Research and Innovation Case Studies
Please complete the template giving an example of research and innovation you have worked on: it could be a study that worked and was a success, something that didn’t work or that is ongoing with issues that need to be resolved. All applicants will have to submit a case, but people from the same team can upload the same case that will be presented by them together, if selected.
Some selected participants will have the opportunity to present their example in the format of a slide presentation (max. 10) to the participants and faculty members during the breakout sessions (as mentioned in the programme). Please don’t submit presentations at this stage in the application process.
Case studies from teams will also be accepted and the whole participating team should be mentioned in the template.
ATTENDANCE TO THE CONFERENCE IS BY APPLICATION ONLY
Successful applicants are granted:
- free registration, up to 2-night accommodation and meals as stated in the programme, flights to and from the location (booked by the provided agency).