CCI4EU - Data Sharing and Exchange

CCI4EU - 6th online course

CCI4EU - Data Sharing and Exchange

CCI4EU - 6th online course


Chairs

: Andre Dekker, NL & Xosé M Fernández, SP

Introduction
CCI4EU (Comprehensive Cancer Infrastructures for the European Union) is a European project aiming to help Member States and Associated Countries improve or develop their existing or future Comprehensive Cancer Infrastructures (CCIs), by helping develop their research & innovation-related capacities.
 
This course is the sixth of 10 online training courses organised within the project to help countries develop an effective comprehensive infrastructure and widen the reach of this grant. The topic of this online course is: Data Sharing and Data Exchange
 
The aim is to understand the rationale, regulatory aspects and possible solutions for data sharing/exchange for research.
 
Target audience
Directors, managers and coordinators at hospitals/clinics/CCIs, clinicians, researchers, patients advocates.
 
Course delivery
This online course was held live on 15 April 2025 via this webpage. The entire course was recorded and is now available as on-demand material.

To access the on-demand materials (after the live streaming), participants must register to the course, login to the e-ESO platform and click on the play buttons inside the course programme. 

 
Official language
The course was held in English. Translations are not provided, but English subtitles can be activated and transcriptions can be automatically translated using free online tools.
 
Registration
Registration to the course is free but mandatory. 
 
Certificate of attendance
Participants will be issued a certificate of attendance once they have completed a minimum attendance of 75% of the entire course. An online evaluation questionnaire must be completed in order to receive the certificate that will be issued by email. The evaluation questionnaire will appear in the right-hand column of the course page when participants have completed 75% of the course.
 
Organising secretariat
Sarah Jennie Goldman: sgoldman@eso.net
Francesca Marangoni: fmarangoni@eso.net
Sonia Bulgarelli: sbulgarelli@eso.net
15/04/2025 13:00

Live Streaming


15/04/2025 13:00

Welcome and Opening Remarks

André Dekker (NL) Xosé M Fernández (UK)

15/04/2025 13:10

Data Sharing and Exchange - Rationale and Background

13:10

FAIR healthcare and research data

Petro Kalendralis (NL)
13:40

Q&A

13:50

Data quality and standards

Andrea Splendiani (CH)
14:20

Q&A

14:30

ELSI (Ethical, Legal, Societal) Implications

Barbara Bressolles (ES)
14:50

Q&A


15/04/2025 15:15

Break


15/04/2025 15:30

Data Sharing & Exchange - Examples

15:30

Data Sharing – Experiences from Population-Based Cancer Registries

Gijs Geleijnse (NL)
16:15

Q&A

16:25

Federated data sharing

André Dekker (NL)
17:10

Q&A


15/04/2025 17:20

Closing Remarks and Key Takeaways

André Dekker (NL) Xosé M Fernández (UK)
André Dekker profile photo
André Dekker

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Andrea Splendiani profile photo
Andrea Splendiani

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Barbara Bressolles profile photo
Barbara Bressolles

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Gijs Geleijnse profile photo
Gijs Geleijnse

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Petro Kalendralis profile photo
Petro Kalendralis

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Xosé M Fernández profile photo
Xosé M Fernández

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