CCI4EU - Patient Centered Cancer Outcome Research

CCI4EU - 8th online course

CCI4EU - Patient Centered Cancer Outcome Research

CCI4EU - 8th online course

Chairs: Cinzia Brunelli, IT and Olatz Garin, SP

Introduction

CCI4EU (Comprehensive Cancer Infrastructures for the European Union) is a European project aiming to help Member States and Associated Countries improve or develop their existing or future Comprehensive Cancer Infrastructures (CCIs), by helping develop their research & innovation-related capacities.

This course is the eighth of 10 online training courses organised within the project to help countries develop an effective comprehensive infrastructure and widen the reach of this grant. The topic of this online course is Patient-Centered Cancer Outcome Research.

The aim is to better understand the concepts and methodology of Patient-Centered Cancer Outcome Research as well as to provide an overview of challenges and impact in the implementation of Cancer Outcome Research.

Target audience

People involved in management, coordinators, policymakers, clinicians, researchers, directors, patients and patient advocates

Course delivery
The first part of this course was made available on this website on 20 July 2025.

The second part of this online course was held live on 16 September 2025 via this webpage.

The entire course has been recorded and will remain available as on-demand material.

To access the on-demand materials (after the live streaming), participants must register to the course, login to the e-ESO platform and click on the play buttons inside the course programme.

Official language

The course was held in English. Translations are not provided, but English subtitles can be activated and transcriptions can be automatically translated using free online tools.

Registration

Registration to the course is free but mandatory.

Certificate of attendance

Participants will be issued a certificate of attendance once they have completed a minimum attendance of 75% of the entire course. An online evaluation questionnaire must be completed in order to receive the certificate that will be issued by email. The evaluation questionnaire will appear in the right-hand column of the course page when participants have completed 75% of the course.

Organising secretariat

Sarah Jennie Goldman: sgoldman@eso.net

Francesca Marangoni: fmarangoni@eso.net

Sonia Bulgarelli: sbulgarelli@eso.net

20/07/2025

Introduction to COR (key concepts)

Patient centered cancer outcome research. What it is and why it matters.

Cinzia Brunelli (IT) Olatz Garin (ES)

Key outcome measures in oncology: PROMs, PREMs and clinical outcome measures - Definitions, objectives and applications

Kelly De Ligt

Minimum clinical data sets

Giovanni Tonon (IT)

20/07/2025

PROMs and PREMs in the real world

Integrating PROMs into clinical workflows - challenges in collecting, analysing, and interpreting PROMs results

Christoph Kowalski (DE)

Nurses as Key Facilitators in PROMs Administration and Integration into Clinical Care

Eva Jolly (SE)

ePROMs in clinical practice: Are we ready for it?

Stein Kaasa (NO)

PREMs for quality of care assessment

Anne Bredart (FR)

Patient contributions: Dos and don’ts in PROMs administration

Nanne Bos (NL) Carina Dantas (PT) Inke Minnée-van Braak (NL)

20/07/2025

PROMS in research

PROMS in Clinical research: the SISAQOL Project

Madeline Pe (BE)

PROMs in HTA (FDA, EMA, HTA policies recognise PROMs as key endpoints in cancer drug approvals)

Valesca Retel (NL)

20/07/2025

Data integration and sharing for COR

Understanding common data models: OMOP, OpenEHR, FHIR

Petro Kalendralis (NL)

Cancer registries: Addressing the challenges of data completeness, integration, quality, standardisation and comparability across European countries

Arndt Volker (DE)

Data sharing agreement

Denise Amram (IT)

16/09/2025 13:00

Live Streaming

16/09/2025 13:00

Introduction and Welcome

Cinzia Brunelli (IT) Olatz Garin (ES)

16/09/2025 13:05